Projects
The initiatives and projects of Sindrome ReNU Italia APS to support families, research and awareness.
Italian Families Map
In developmentAn interactive map of Italian families with a child or adult with ReNU Syndrome, to connect, share experiences and build a support network. Publication is subject to GDPR consent collection.
Get updatesNational ReNU Patient Registry
Being definedAnonymous data collection project for Italian patients with ReNU Syndrome, in collaboration with the Scientific Committee chaired by Dr. Donatella Milani. Will be coordinated with Italian diagnostic centers.
Get updatesReNU School Pathway
In planningMaterials and guidelines to support teachers, educators and schools in including children with ReNU Syndrome. Brochures, information sheets and expert contacts.
Get updatesPediatrician Awareness Campaign
In planningAwareness campaign targeting Italian pediatricians on ReNU Syndrome: distribution of informational materials, contacts with scientific societies and medical associations to reduce diagnostic times.
Get updatesMove 4 ReNU Italia
Active – internationalParticipate in the international sports campaign Move 4 ReNU to raise funds for ReNU Syndrome research. Every kilometre counts!
Join nowHave a project idea?
We are a family association: every idea is valuable. Write to us at info@sindromerenu.it to propose collaborations, initiatives and campaigns.
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