FAQ & Anti-Bureaucracy Guide
Everything you need to know about rights, benefits and practical procedures for families with a ReNU Syndrome child in Italy.
Legal disclaimer
The information in this guide is for informational purposes only and does not replace professional legal advice. For specific cases, contact a patronato or legal consultant specializing in disability law. Updated April 2026.
How to apply for Law 104
- 1 Ask your family doctor for a disability assessment report.
- 2 Submit an application to INPS via inps.it or through a free patronato.
- 3 Wait for the Medical Commission (ASL) appointment (may take several months).
- 4 In documented urgent cases, you can request an urgent visit.
- 5 Once the severe disability certificate (art. 3 comma 3) is obtained, you can proceed with work and school benefits.
💡 Contact info@sindromerenu.it for support during the procedure.
How to get the Disabled Car Badge
- 1 A ReNU child may qualify for the badge if they have walking difficulties.
- 2 Ask your family doctor for a specific medical certificate.
- 3 Submit the application to the Registry Office of your municipality.
- 4 The municipality issues the badge after a local medical commission visit.
- 5 The badge is valid for 5 years (or permanently) and renewed with new certification.
💡 The badge allows parking in reserved areas, ZTL zones and parking discounts.
How to get the Disability Card
- 1 The Disability Card is requested via the INPS website (myINPS) after obtaining disability recognition.
- 2 You need the civil disability, blindness, deafness or handicap certificate (Law 104).
- 3 Log in to inps.it with SPID or CIE, search for "European Disability Card".
- 4 The card is free and sent home.
- 5 Provides benefits at museums, transport, public and private facilities.
💡 The Disability Card is valid throughout Europe and is different from the car badge.
How to request school support
- 1 Obtain the disability certificate (Law 104 art. 3 comma 1 or 3) and functional diagnosis.
- 2 Submit documentation to the school before the start of the school year.
- 3 The school convenes the GLHO to define the PEI (Individual Educational Plan).
- 4 The support teacher is assigned by the Regional School Office (USR).
- 5 If denied or hours are insufficient, you can appeal via the Civil Ombudsman or a lawyer.
💡 You have the right to a PEI even in nursery school. Don't wait for primary school!
Which bonuses and benefits are available
- 1 INPS Attendance Allowance: for those unable to walk or perform daily activities. Current amount about €530/month.
- 2 INPS Unique Allowance: for all children up to 21, with supplement for disabled children.
- 3 19% IRPEF deduction for medical, rehabilitation and specific assistance expenses.
- 4 Reduced VAT (4%) on aids and medical devices for disabled people.
- 5 Healthcare ticket exemption by income or pathology.
- 6 Benefits for purchase of adapted vehicles (4% VAT, IRPEF deduction).
- 7 Fund for Persons with Disabilities (FNPS) – via municipalities.
💡 Contact a patronato (CAAF, ACLI, CGIL, CISL, UIL) for free advice on bonuses and benefits.
Frequently Asked Questions (FAQ)
- 1 When should diagnosis be made? – As soon as possible. Contact clinical genetics centers experienced in rare diseases.
- 2 Is ReNU Syndrome hereditary? – In most cases it is sporadic (de novo). Recurrence risk is low but should be assessed with a geneticist.
- 3 Are there specific therapies for ReNU? – Currently no causal therapy exists. Therapies are supportive (physiotherapy, speech therapy, Feuerstein, etc.).
- 4 How can I connect with other Italian families? – Write to info@sindromerenu.it or join the Facebook group "Sindrome ReNU Italia".
- 5 How do I access research contributions? – Research advances through international studies (INDEED, RARE-X, GestaltMatcher). Contact us for information on how to participate.
- 6 Where can I find expert doctors in Italy? – The scientific committee is coordinated by Dr. Donatella Milani. Contact us at info@sindromerenu.it.
💡 Can't find the answer? Write to info@sindromerenu.it: we continuously add new FAQs!
Still have questions?
The Sindrome ReNU Italia APS team is at your disposal. We will write together to the competent institutions and support you every step of the way.
Write to info@sindromerenu.it