Events & Meetings
All appointments, family meetings and initiatives of Sindrome ReNU Italia APS.
Run with us. Give voice to ReNU.
Rare, not invisible.
Every story deserves a future. Help us build it.
On 4 April 2027, at the Milano Marathon, choose to support Sindrome ReNU Italia APS. Our association takes part in the Charity Marathon, one of Italy's most important solidarity fundraising events.
Join as a runner
Run with us and involve friends and family in fundraising.
Companies, let's team up
Involve your company and turn values into concrete commitment. Visibility, CSR and team building.
Give visibility to ReNU
Through the marathon we will tell our story to a wide audience and help raise awareness of this very rare syndrome.
Every step can become concrete help.
Want to take part, alone or with your company? Leave your contacts: we will help you create a fundraising page on Rete del Dono.
Your company can make a difference. Leave the contact details and we will get back to you to find the most suitable way to participate.
Events Calendar
ReNU Families Meeting
Move4ReNU – The International Initiative
Move4ReNU
Every April – Worldwide
Move4ReNU is the sports and awareness initiative launched by the international ReNU community. Every April, families and supporters from around the world walk, run, cycle or dance to raise awareness of ReNU Syndrome.
🇮🇹 Italiano
🇬🇧 English
🇫🇷 Français
🇪🇸 Español
🇩🇪 Deutsch
ReNU Syndrome Global Day
ReNU Syndrome Global Day
February 4, 2027 – Internationally coordinated event
On February 4, 2027, on the occasion of Rare Disease Day, Sindrome ReNU Italia APS promotes the first ReNU Syndrome Global Day in Italy, in coordination with international partner associations.
Dynamo Camp – Therapeutic Recreation
Dynamo Camp is a Therapeutic Recreation programme offering free stays to children and young people with serious or chronic illnesses, including rare diseases. Sindrome ReNU Italia APS collaborates with Dynamo to ensure our children have this valuable opportunity for play, socialising and wellbeing.
Have an event idea?
Write to us! We welcome proposals for meetings, webinars, sports events, awareness initiatives and more.
Propose an event